Again sorry for the long delay in posting. It has been a busy few days. To begin Wyatt has hydrocephalus (water on the brain, actually spinal fluid). This causes pressure on his brain eventually and can cause difficulty in breathing, his heart to stop or a host of other things. We had a consult with pediatric neurosurgery the doctor was Dr. Yaun, she is the Chief of Pediatric Neurosurgery, she is outstanding. Dr. Yaun wanted a head MRI in order to get a better idea of what is going on. This is where we encountered our first hurdle. Wyatt is on a vent that is providing volume control to his little lungs. The only vent the hospital has that is MRI safe only does pressure control. so we switched the mode on his vent as a test and he did not like the pressure control at all, he could not hold his saturation for very long and was very agitated. The MRI would require him to he on the pressure vent for around an hour. Because of this he will not get an MRI and will not be getting a shunt to relieve the excess fluid/pressure that will most likely continue to build over time. There was three days of back and forth with Wyatt's attending Doctor, Dr. Yaun, and pediatric surgery that I will not bore you with, but I will say this if you ever need a Pediatric Neurosurgeon Dr. Yaun has our highest regards. She went to bat for Wyatt when we hit a roadblock with his attending saying that he needed a central line put in. The problem with a central line is pediatric surgery has to do those and they said they didnt want to. She found a workaround and set the attending strait but now all of that is off as previously stated.

This afternoon they are bringing in the transport isolette and test him on it to see how he does. If all goes well we will be heading back to Norman Regional as early as Saturday (tomorrow). We will see. Wyatt has had several bad episodes over the last 3-4 days including one when his trach got clogged, was a very scary moment and probably the worst we have seen.

Pray for Wyatt and all sick babies.

-Dad