Day 24

Well today is a much better day for Wyatt. Started the day with a blood gas test at 6:00am, it was down from 130 the night before to 65ish but he had a temperature of 101. They did a CBC, CRP, and blood culture. CBC was good, CRP was elevated to 3 (anything over 8, will likely get a broad spectrum antibiotic). Blood culture came back fine. But the culture from the lung fluid last night is growing bacteria. This afternoon at 5pm his blood gas was still around 65, so the vent pressure was dropped from 32 to 30 and respirations to 35.

Out sweet angel is resting well. Thank you all for the continued thoughts and Prayers. 

-Dad

Day 23

Wyatt has had a rough day. He has had several "episodes" where his pulse ox drops to the 50's or so and his heart rate drops very low as well, in the 50-60's. The Doctor had to take him of the vent and bad him late this afternoon. It took her about 10 min to get his pulse ox back up to the mid 80's. Then they did a blood gas test, normal CO2 range is 35 to 45, his was 121 at 5:30. They did a chest X-ray to check his tube placement, it was fine, but found his lungs have a lot of fluid and part of his upper right lung has collapsed, doing a culture to make sure there is no infection in his lungs. They increased the vent pressure to 29 and the respiration rate of 40. The Doctor had a very frank talk with us. She said that his body may just be getting tired of fighting. We left from 6-8 while the NICU is closed.

Back at 8pm. Another blood gas was done and his CO2 has risen to 130ish. They have changed his vent settings to 45 respirations and a pressure of 33 (highest he has had, there is a concern that at around 35 pressure he may have a pneumothorax.)

9:45pm just had another blood gas and is was 62...chest xray at 10pm to check his lung.

Say a Prayer for little Wyatt Jack...

Wyatt has won so many hearts up here!!! It makes us so proud when nurses request to take care of our little guy!!!! He is becoming increasingly more demanding and a nurse tonight asked us if it would be ok if she requested to have him every time she worked!!!!! I teared up and of coarse said yes it would be our honor to have you take care of our son. Great people with even bigger hearts work here at Norman regional NICU!!! We are so thankful and appreciative!!!!

Wyatt's mom

Day 22

Wyatt had a very busy day...you see one of the babies in the NICU challenged him to do the ALS Ice Bucket Challenge. Well ok maybe not quite like the Ice Bucket Challenge. It is more like a Baby Bath Tub Challenge. As we have mentioned before, Wyatt loves to get a bath so I have added a link for a video of him taking the Baby Bath Tub Challenge. He will not be challenging anyone to take a bath (although you should already be doing that daily), but I challenge you to stop what you are doing right now and say a Prayer for our little guy, then watch the video. He is just as relaxed as can be.

-Dad

Day 21

Woop woop!!! We have made it to 3 weeks!!!! Time to celebrate!!! Wyatt had a really bad night last night. His heart rate went down to 70 and his O2 went down to 40. Just for reference the machine goes off when his O2 goes down below 85. They had to bag him to get him breathing again. His heart rate and O2 dropped again dramatically two additional times, but he pulled out of those on his own. He is doing better today. He put his superman outfit on and is feeling better!!!

God speed little man!

-Wyatt's mom

Tonight is a pretty good night. Wyatt is resting well and his color is nice and pink. I spent most of the day talking with or leaving messages with Skeletal Dysplasia Clinics across the U.S. To include, New York University, Akron Children's Hospital, university of Wisconsin Medical School, Cedars Sinai in L.A. (UCLA), DuPont hospital in Delaware and was on hold for 40 min with Seattle children's hospital before I hung up (will call back tomorrow and harass them). We are sending out Wyatt's medical records to several of them tomorrow for review.

We purchased a little machine that plays lullabies for Wyatt's room. Not sure who we really got it for, seems to make Kelly and I wanna sleep more than anything.

-Dad

Day 19

Wyatt continued to struggle a little bit on Saturday and then started getting better later in the day. He had a way better day on Sunday. This morning he had the tube moved to the other side of his mouth and he got a bath. Right now Dad is holding him and I'm not sure who is enjoying it more...Wyatt or Dad! He enjoyed his bath and smells go good afterwards. We discovered a blister on his neck last night. Nikki said it was pretty common due to the limited amount he can move and he must have gotten hot. Imagine that...a Boatwright sweating and getting hot!!! She treated it and put some medicine on it. It looks a lot better today, but broke my heart when I discovered it late last night. Who knew those precious rolls could cause problems.

God speed little man!! -Wyatt's mom

This evening Wyatt has been doing pretty well. He is saturating well and has had his eyes open looking around a fair amount. His eyes are magical.

Also Kelly is getting to hold him now as depicted in the photo. We have now upgraded from IPhone music to iPhone music via Bluetooth to an external speaker. On the music menu for this evening is the lumineers and Dave Matthews (my favorite).

-Dad

Day 17

Wyatt had a rough night, his O2 saturation kept dropping. This morning was good until the last hour or so. Again his O2 saturation keeps dropping to the high 70's and low 80's requiring the vent o2 to be raised to allow for him to recover.

Doctor K. came in this morning and advised us that he has spoken with the surgeons and Dysplaysia Clinic Doctors in Houston (Texas Childrens Hospital). They said that Wyatt Jack would not survive any potential surgery and therefore they would not be interested in doing one. We have not given up Hope and continue to Pray for wisdom and guidance concerning Wyatt's care.  -Dad

Day 15

Wyatt is getting his intubation tube changed right now. This is very hard on him physically. They will not let us stay in the room when changing this out. Although Kelly and memaw and pops did get to stay in the room the first time he got it changed out. They said it was very traumatic for them and for Wyatt. Today they are going to attempt putting in a bigger tube.

The song by Reckless Kelly that Kelly was singing to Wyatt last night is called "Be my friend (in real life)." He added in the best while singing it to Wyatt. He started off the session with "I'm going to share with you all my favorites." He of course was referring to all the bands and songs he loves. As he scrolled thru his iPhone and picked out his very favorite bands and songs and sang each one to him. Sometimes adding in his own twist which brought tears to my eyes every time!!! I will post an update later on how the tube changing went. Please pray for our little guy, bigger chest bones and bigger lungs. Everything else on him is perfect!!!!

God speed little man!!!!

Wyatt's mom

You come here for updates on Wyatt and to some extent how Kelly and I are doing. This has proven to be an experience that words can hardly harness. The joys of becoming parents and the immeasurable support from family and friends only ads to our experience. We would be remiss if we didn't share with you our experience in reference to the Hospital staff, specifically the NICU Nurses and Respiratory Therapists.

Let me begin early on...As you know we were told that Wyatt Jack would most likely not survive long after birth. So a meeting was arranged with a nurse named Nickie. Nickie has had a lot of experience with helping families who lose their newborns. She volunteers to "counsel" families on many areas to include what will happen in the delivery room all the way to how the hospital will handle the passing of a child and the grieving process. She gave us many resources and support. Doctor Lashbrook, my wife's doctor (more on her later, she is great), had requested Nickie to be with us during the entire way through. She did Kelly's triage (pre-op preparation), she got me squared away with scrubs and into the operating room. She took photos for us, put them on a CD, and made multiple trips to see Wyatt and Kelly over the next week.

Now for the NICU nurses, Cathy, Nikki, Suzanne, Billie, Anne, Lisa, Sara, Lindsey, Angelica and Jerrie, as well as the Respiratory Therapists (RT's). Laura, Cheri, Alisha, Kyle, Marsha and Colton. These ladies and two guys are Angels and consummate professionals. We have become close with several of them over the last 15 days, they do a job day after day that I am in awe of. In the NICU they have three levels of care: one, two and three. One being the easiest to care for (not that it is easy) and three being the most difficult. Wyatt is a level three. It says a lot for their character and desire to help that they request to be Wyatt's nurse. In fact a couple of them have called in on their day off to request him as a patient before the charge nurse does the assignments. He is a special boy and has truly captured the hearts of many. We have Prayed with one of the nurses. Ordered lunch with them and Kelly went and picked it up (we bought, it was the least we could do). They allow us some slack in several areas and talk with us as if we have been friends for years. They have made this most difficult time so much more bearable and Pray they are Blessed for the care they provide.

Wyatt's Dad

Day 14

Today I got to hold Wyatt for about 1.5 hours. I had a doctors appointment or I would have held him longer. He was so good. My mind starts racing when looking at him. Wondering what the future holds for our precious boy. Then I have to go back to appreciating what is in front of me right now...my son!!! We were told he would only be here a short time so day 14 means so much to us!!!! It gets overwhelming if you start thinking long term so we are taking it day by day. Let me tell you reading all of your posts help us tremendously!!!!!! We are constantly checking our phones to see if anyone has posted anything new and get excited for each and every one of them!!! After reading them we realize we are not in this alone. We have the grace of god, our family, and a network of friends that go on for days!!!!!! So thank you from the bottom of our hearts for each and every post!!!! They mean so much to us and most of the time help us get through the day.

P.S. Kelly Jack is holding Wyatt right now and singing Reckless Kelly to him and changed the words to say would you be my best friend and needless to say I am in tears right now!!! He is such a great dad!!!!!

God speed little man!!!

Wyatt's Mom

Day 13

Wyatt was so alert today. He stayed awake with his eyes wide open for over an hour!! It was such a sweet hour!! We talked, sang, and told stories to him. He was fighting going back to sleep. He is such a fighter! I look into his eyes and they are saying so much. Sometimes I feel like they are screaming help me and I just crumble inside because I cannot make things better for him. He has been resting so well the past two days. He loves being swaddled!! I hang out beside his bed all day. If I could find a way to get in it with him and not break it I would!!! I can't get close enough, rub him long enough, kiss him enough, talk to him enough, and each one mean a little bit more because he is still here with us!!!! He is so GREAT!!!! I wish everyone could be here to witness his sweetness!!!

Wyatt's Mom

Day 12

Baby Wyatt is doing well. He is in a holding pattern and looking cute as ever. He got his cat scanned (had a CT scan) today and did really well. They put him in a transport that has a ventilator and carted him down to radiology. Once back at the room his nurse (my favorite) gave him a bath and put him in some clothes then swaddled him up. He loves to be swaddled and when Kelly Girl held him today he was as content as can be until he has a little business in diaper. He can't stand to have a dirty diaper.

Day 11

Wyatt had another good night, his O2 is at 29%, pressure is at 25, and respirations set at 30. He is opening his eye more often now. They keep him comfortable with a low dose of Phenobarbital. We are getting some rest but stay tired.

Last night around 11:00pm we got to give Wyatt his 2nd bath. He loves bath time!! He really likes his head rubbed!!!!!!!!! He does not like preparing for bath time...getting all the leads taken off. He hates adhesive and unfortunately he has to have a lot of it on his face and body. The nurses use this magic stuff to get the adhesive to come off easily, but his delicate little skin is bright red once it is exposed. I wish you could smell him thru this website. He smells heavenly!!!! Hopefully later today we will get to hold our miracle baby!!! I can't wait!!!!!!!!!

God Speed little man!!!! -Wyatt's Mom

Day 10

Well Wyatt is doing pretty well. He is stable and they are mostly leaving the vent settings alone. They took out the last stitch in his bellybutton. I spoke with the doctor yesterday about what is to come in the short term. He said once we get the genetic results back from Greenwood Genetic Center, Kelly and I will most likely have to make a trip to Houston to Texas Childrens Hospital and take his file, xrays, CT results etc. and talk with their specialists to see if there is anything they can do for our sweet Wyatt.

Pray long and often for him.

Hello all!! Thank you so much for all of the inspirational and uplifting comments you have sent us and little Wyatt! We appreciate it so much!! I'm not sure if this website is better for you guys or for us. We get on it all the time to see who is looking and posting about our special boy and get so much excitement from seeing each new update. So thank you all!!!! You each have uplifted our spirits and brought smiles to our faces. Please keep praying for sweet Wyatt. He has a long road ahead and prayer is so powerful!!! I cannot believe it is day 10!!!!!!!!!! Wow, what a blessing God has given Kelly and I. We are so proud to call Wyatt our son and cannot believe the support we have received so far. You guys have been great!

-Wyatt's mom (I love the way that sounds!!!!)

Day 9

10:40am - Well baby Wyatt is much better this morning than he was last night. They changed his Vent pressure from 20 to 26 and his O2 on the vent went from around 70% last night to 31% this morning. He is resting peacefully now. Below is a photo of his back and arm fur. 11:50pm - Wyatt is resting very well. They have him on 35% O2, 30 respirations and a pressure of 25. They began giving him an oil supplement in his milk, it has more fat so that he can put on some weight. He is also maxed out on his milk at 47 CC's every three hours. They also took out his IV line that was in his bellybutton. Doctor said they will do a CT scan on Monday.

Thank you for all your Prayers and support.

Day 8

Well today was a good day. Kelly and I were extremely tired I had about 6 hours and she was up and down every two hours or so. Wyatt, did really well through the night. This morning his bilirubin was down to a 1, he gets the blue light if it goes back to 10 or more. His CRP was down to 3ish from 8.2. The Doctor has ordered his IV line in his bellybutton hole to be removed. The nurse tried to put in a IV in a vein but couldn't get one stated. So the line stays in the belly for another day. One of the big events of the day was Wyatt getting his intubation tube changes out. He was not happy about that. Below is a photo of him without a tube in. Pretty stinking cute if you ask me. The highlight of our day of course was getting to hold Wyatt, about 2.5 hours between the two of us. We left at 6pm (the NICU kicks all visitors out from 6-8 for shift change) to go home. Our neighbor brought over diner, we ate, and headed back to the hospital about ten after eight.

1:15am We are back home. Little Wyatt has having a rough evening. Pulse oxygen kept dropping. Finally became stable when we left. Pray for the little one.

Day 7

One week old...what a miracle. Still waiting on genetic test results to get back so we will no what type of skeletal dysplasia he has. Today they took out the central line that was measuring arterial BP and left in his IV. Now BP is measured by a cuff. Kelly and I Both had an opportunity to hold little Wyatt Jack at around 11:45pm and left around 1:15am Thursday Morning.  Oh, one other thing, Wyatt Jack is one week old. We thank the Lord every day for this gift and look forward to many years with him.

Day 6

Tuesday they took the blue light off of Wyatt. His bilirubin had lowered and the antibiotics had reduced his CRP to an acceptable level. The results of his heart echo were fine and the results from his brain ultra sound and organ scans were fine. He did however have a rough night. They dropped his respirations to 20 and he didn't like that at all. his pulse oxygen level kept dropping very low. He had a nurse that was new to us, turns out that relationship failed before it began. We ended up expressing our concerns with the charge nurse and the way Wyatt's care was being handled. They got him back on a respiration of 30 which he did really well with. We just think the nurse was in over her head. She will not be taking care of Wyatt again. Kelly's niece took her home and I stayed till 5 am to ensure Wyatt was taken care of.

He is a fighter...

Day 5

Well day 5 was upon us. Wyatt was stable and the doctor told us that we had to go home and that we couldn't stay in our room. This was not well received. So we packed up our stuff and moved out. Now for the good part. Kelly got to give Wyatt a bath and we both had an opportunity to hold him. He continued to do well. He had a ultra sound on his brain, kidneys and other organs. All checked out fine. His food began to be increased by 3 CC's every other feeding.

Day 4

Wyatt was holding his own still. His CRP went up so they gave him two broad spectrum antibiotics, and his bilirubin was high which caused him to be a little jaundice. So they put the blue light on him and some cool shades to protect his eyes. Kelly Girls dad called him Zorro. Doctor still working his O2, respirations and pressure. He also began eating via a tube. This was the last day Kelly could stay in the hospital officially but they were going to let us stay in our room "off the grid" no help, do our own beds, bathroom cleaning, etc. Much like living in a hotel. Continued to have the most amazing support from friends and family.

Day 2

Well there we were, beating the odds. Wyatt was stable and now the waiting game begins. The Doctor, Dr. K.*, started with him on 100% O2 (oxygen) and a 60 respirations/min. with a max pressure of He was doing pretty good until around 8:15 or so Friday evening. On day one around 10:30 they had kept his O2 support at 40% and changed his vent pressure from 27 to 24 (the lower this number is the better.) They also went ahead and dropped his O2 to 35% around 10:s45pm on Thursday. This was all good news. Now back to Friday, day 2. Dr. K. began working on the pressures, O2, and respiration on the vent. to began the process of seeing what Wyatt's lungs were capable of. Then on Friday night Wyatt hit a bump in the road. They had to put him on 100% O2 and increase his vent pressure to 30, the highest it had been. Dr. K. came to talk to us, about his concerns. The biggest of which was that if they had to increase the pressure much more that Wyatt's lung could burst. Dr. K. said that going to 35 on the pressure may very well do just that. We didn't know what was going to happen. We had contacted an organization called Now I Lay Me Down to Sleep (NILMDTS, more on them in a bit) to take photos if Wyatt didn't survive after birth. We had not needed their services on Thursday but now we thought we might. We had Janelle (NILMDTS photographer) come and take a few photos of Wyatt and us. Wyatt recovered again by the Grace of God. This was a very hard night. Kelly and I stayed with Wyatt most of the night, Kelly Girls parents went home for a couple of hours in the wee hours of the morning. My mom and dad slept in their Tahoe. Other family and friends crashed all over the place and some didn't sleep (Tracie P.) at all. I had Kelly go back to the room sometime during the night, as she needed her rest. I stayed with little Wyatt Jack for several more hours. I tried to leave on four different occasions and each time I would go to leave i would give him a kiss and he would open his eyes. As you can see in the darker photo (not sure why my IPhone was making it so dark) I could never leave those eyes. Worth every minute. * they call Doctor, Dr. K. because no one seem to be able to pronounce his name.

Day 1

Well as you would figure day one was a pure joy. Wyatt was intubated and by the Grace of God he was still with us. Kelly Girl had lots of swelling in her feet and legs and couldn't wait to see baby Wyatt. Typically they want you to stay in bed for 4-6 hours (so we were told) for the spinal block to wear off. Well Kelly was up and out the door in a wheel chair in about 2 hours headed down the hall to see Wyatt. Below is one of the first pictures we have with him. I look like a tourist. I honestly don't know how many people were here to support us but I can tell you that the population of Norman went up by a fair amount. We had the Grandparents, other family and a few friends cycle through to see him, seemed like a never ending line. We are blessed to have them all in our lives.